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Eleanor Keisman's avatar

“What kind of cheese is your brain like these days?” That thought is going to stay with me! Mine is like a moldy blue, left out of the fridge too long on a hot day, partly stuck to the counter.

I’m a writer also living with hEDS (long time suspected but just newly diagnosed) and struggling to find a way to keep producing and creating with symptoms flaring up severely in my 40s. I relate very much to your experience of taking months to do several hours of work. But, it’s the fact that you do it, that’s what matters.

Love the pain banana.

Thank you so much for sharing your personal experience with such honesty and humor.

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Kelley Clink (they/she)'s avatar

Thank you so much! And also, I’m so sorry you can relate, and Im glad you’re here.

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Jennifer Ortiz's avatar

Ah, the simultaneous relief and sadness, of finding other people who are experiencing the same thing. Also long time suspected, late diagnosed and struggling. I used to write; where have the words gone? Not sure what kinda cheese my brain is, but it definitely feels like a human version of a video buffering or the not responding beachball thing on a computer.

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Kelley Clink (they/she)'s avatar

Oh yes, that metaphor works too 😭

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Sarah Johnson's avatar

I deeply relate to the snail brain! And also trying to do anything with chronic illness and a small child, ye gods.

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Kelley Clink (they/she)'s avatar

It’s impossible, right?!

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Dae's avatar

❤️

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